ME Association Release : “DWP produce new draft on medical guidance”
"The Department of Work and Pensions (DWP) have produced a revised draft containing their proposals for new medical guidance on ME/CFS in relation to state disability benefit (ie DLA) entitlement (...)...
View ArticleME Association Release : “Draft DWP guidance – still not good enough”
"The revised draft appears to have been written by the same group of health professionals, possibly with some external advice, and although some of the very unhelpful comments in the original draft...
View ArticleME Association Release : “DWP draft guidance on ME/CFS to be rewritten”
"This is a fairly brief report on the DWP meeting that was held on Monday 17 October to discuss the latest draft of proposed new medical guidance on ME/CFS..."
View Article“More MPs sign Commons’ motion on scientific research into MP”
"Since returning from their summer break, another 30 MPs have signed Early Day Motion 260 whch calls for more scientific research into MP - bringing the total number of signatories up to 177..."
View ArticleME Association Release : “Next All-Party Parliamentary Group on ME meeting,...
The next meeting of the Westminster APPG will take place on Wednesday 16 November from 1pm to 2pm...
View ArticlePress Release: ‘Young Hearts Day 2005 : Remembering Children With M.E.’
Tuesday 29 November is Young Hearts Day, inaugurated by The Young ME Sufferers Trust in 2004, in tribute to children with ME. ...
View ArticleME Association Release : “Campaign to HELP ME WALES”
"At present there is no NHS service for people with ME in Wales. Sufferers are having to travel 200-plus miles for any sort of management or treatment. This is a deplorable situation that can not be...
View ArticleThe ME Conference 2006 (UK)
"Invest In M.E. are extremely pleased to announce The ME Conference of 2006 - An Update on Clinical Diagnosis, Research Trends and Educational Support, which will be held in London on the 12th May...
View ArticleME Association Release: New Online Legal Service For Disabled People (UK)
" A panel of about 100 solicitors round the UK have set up a new online law service - with a special service for disabled clients, run in association with the Disability Alliance...."
View ArticleHave YOU Recovered From ME/CFS?
Have you recovered from ME/CFS? If so, the ME/CFS/CFIDS International Recovery Register would like to hear from you...
View ArticleMore News About ME/CFS In UK State Benefits Handbook : Gibson Enquiry
For those of you who are following the DWP saga (re. ME/CFS), here's an interesting report by Professor Malcolm Hooper, Eileen Marshall & Margaret Williams. Here are a few quotes from the report...
View ArticleInvest In M.E. : ‘ME & My MP’
Many of you may have been around when we launched our own campaign in June 2005 to encourage ME/CFS sufferers in the UK to write to their MPs about research funding and state benefits. Well, Invest In...
View ArticleWatch ME/CFS TV Programme Online…
You can now watch a series of programmes about severely-affected ME/CFS sufferers on the Invest In M.E. web site...
View ArticleHelp Raise Money For ME/CFS Research!
If you have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) then you will probably have come to know how little we still know about this illness. This fact has contributed to the medical...
View ArticleUpdated: CFS/ME & Medical Scepticism Page
There still exists a lot of medical scepticism and disbelief that surrounds Chronic Fatigue Syndrome / M.E. (ME/CFS). Yet M.E. / Post Viral Fatigue Syndrome are recognised by both the World Health...
View ArticlePlease Vote For ME/CFS & FMS!
Jessica Williams, an author, has written a book called ?How To Give To Charity? and is generously donating all royalties from sales to a fund to be given to charity. Icon Books, her publisher, is...
View ArticleHave Your Say! The ‘M.E. People’s Day 2006′ Petition
There is now a petition highlighting the need for clear and concise clinical guidelines for M.E, which is to be presented to Parliament on 3rd December 2006: European Day of Disabled People...
View ArticlePatient Opinion Service About The NHS (UK)
Patient Opinion is a new service that tells you what other people are saying about your local health services and lets you share your story with others...
View ArticleME Association To Adopt The Canadian ME/CFS Guidelines
Here's a post made by the ME Association about the Canadia Guidelines...
View ArticleME Association: Response To Proposed New Medical Guidance From The DWP (UK)
"(...) we still find this guidance unacceptable and believe that a further meeting with charity representatives will have to be arranged..."
View Article‘CFIDS Association of America’ Release: “Join us for Lobby Day 2006!”
"We want YOU to join us in Washington, D.C. on May 8-9 for the CFIDS Association of America's 14th Lobby Day on Capitol Hill..."
View ArticleME Awareness Week: Coming Soon!
ME Awareness Week - 8 to 14 May 2006. Are you doing anything for ME Awareness week? Here is some information from some charities who would love you to get involved...
View ArticleGraded Exercise Therapy For ME/ Chronic Fatigue Syndrome
Have you been recommended to do Graded Exercise Therapy (GET)? If you have, then approach with extreme caution. If you are unhappy with how Graded Exercise is affecting your health, it may be an idea...
View ArticlePlease Vote: Which ME/CFS & FMS Freebie Would You Prefer?
I'm planning on writing a few freebies on M.E. /Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FMS). There are a few ideas, but I need to know which you'd be most interested in. So...
View ArticleUS Sufferers: A Call For Congressional Action…
Steven Du Pre, Vice-President of the California Capital CFIDS Association recently sent me this email. I'm posting it here for everyone to read. If you live in the USA, please consider helping to...
View ArticleME Conference 2006 in London on 12th May
Here's some recent information from Invest In M.E. who will be running the ME Conference 2006 in London on 12th May...
View ArticleMedia Article: “We must end ‘yuppie flu’ myth”
Here's an interesting article about an MP who is calling for an inquiry into Myalgic Encephalomyelitis (M.E.)...
View Article“Medical Reports On People Claiming Some (UK) Benefits Are Unreliable Or...
"Almost 80,000 sick and disabled people a year are being wrongly denied benefits, according to a BBC investigation for Radio Five Live..."
View ArticleInvest In M.E. DVD Soon To Be Available
The ME Conference 2006 brought together delegates from 6 countries and forged new relationships between people who are determined to safeguard proper funding for treatment/cure for myalgic...
View ArticleMedia Article: “ME: A hidden national scandal”
"In July 2005 a campaign was launched in Hampshire to protest about the opening of the latest of the new "ME/CFS clinics...."
View ArticleMedia Article: “One ME Sufferer In Every Secondary School”
"The medical profession is neglecting young ME sufferers according to national children's charity AYME (Association for Young People with ME)..."
View ArticleME Association –“New designer T-shirts from The ME Association”
“IT’S REAL! IT’S PHYSICAL! IT’S THE NEW T-SHIRT FROM THE MEA!” If you would like to highlight the cause of ME/CFS, then you may be interested in the new designer T shirts from the ME Association. The T...
View ArticleLaunch! The Free Sleepydust ME/CFS Online Video Now Available!
The Free Sleepydust Online Video has finally been launched! The video is to help the friends and family of ME/CFS [Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Post Viral Fatigue Syndrome]...
View ArticleAccess To The Free Sleepydust Video
If you've been experiencing problems accessing the free Sleepydust video about ME/ Chronic Fatigue Syndrome, it could be that...
View ArticleDo You Have A Blog, Or Run A Web Site Or Forum?
There's no doubt about it - we can make more of a difference as a collective. That's why we've made our ME/CFS video available for FREE, for YOU to host on YOUR own sites, forums, and blogs. Yep,...
View ArticleVote For The Sleepydust Video!
As you may or may not know, we've now launched the Sleepydust ME/CFS video on YouTube. But now we need YOUR help! We need your votes! YouTube is a great place to raise the profile of ME/CFS...
View ArticleCome Join Us Over At MySpace!
Yep! We are now officially on MySpace and we want to meet you! We're hoping to connect other Sleepydusters and ME / Chronic Fatigue Syndrome / Post Viral Fatigue Syndrome and Fibromyalgia sufferers...
View ArticleHost The News On Your Blog Or Site
Do you have a MySpace page? A blog? Maybe you run a web site or a forum? Now you can help to spread the word by hosting the latest news on your site. Just click on the link that says ‘Grab This...
View ArticleWant To Support Sleepydust? Here’s How!
Can you help spread the word by telling other sufferers, your friends, and family about Sleepydust? Through it’s various web pages, ezines, course, videos, and audios, Sleepydust continues to help...
View ArticleME Association: “MEA responds to Version 10 of the DWP medical guidance”
If you suffer from moderate or severe ME/CFS and have tried to apply for Disability Living Allowance, then chances are that you’ve probably had to go to appeal in order to obtain DLA. This is what the...
View ArticleA letter to your MP
From the ME association: Please help us raise the profile of ME in Parliament… Source: ME Association Other interesting news:Please send a letter to your MPGrants for powered wheelchairs?Health...
View ArticleFinancing a judicial review of the NICE guideline on ME/CFS
The ME Association recently received an email from the One Click Group asking for a contribution towards the costs of bringing a legal action for judicial review of the NICE Guideline on CFS/ME. The...
View ArticleMyalgic Encephalomyelitis – Help Improve ME Services
HELP IMPROVE ME SERVICES South Wales Evening Post, UK ME (myalgic encephalomyelitis) – to mark ME Awareness Month, the ME Association wants to hear from as many people as possible about their...
View ArticleMore help needed for those whose lives are devastated by ME – Scotsman
More help needed for those whose lives are devastated by ME Scotsman, United Kingdom - May 16, 2008 In Lothian, patients with ME may be selected to take part in a national research trial into the...
View ArticleNorwich ME Sufferer Wins Court Ruling…
Norwich ME sufferer wins court ruling Norfolk Eastern Daily Press, UK Myalgic Encephalomyelitis, or chronic fatigue syndrome, has been surrounded by controversy since the first sufferers were diagnosed...
View ArticleRCGP Agrees To Stop Classifying Chronic Fatigue Syndrome As A Mental Health...
News from the ME Association (UK) This is an important precedent in that it will now be very difficult for anyone in a position of authority to claim that CFS (or ME or CFS) can be classified or...
View ArticleTake A Survey To Help Change NICE Guidelines For The Better!
The ME Association want to put forward a better alternative to the current NICE guidelines regarding the treatment and management of patients with ME/CFS. They would like sufferers and their carers to...
View ArticleHealth leaders accused of burying report on ME and Chronic Fatigue Syndrome...
Health leaders accused of ‘burying’ report on ME care Scotsman, United Kingdom - Aug 16, 2008 Based on the results of a survey of patients with ME and Chronic Fatigue Syndrome (CFS), the report...
View ArticleMyalgic Encephalomyelitis needs research
ME needs research Times Online, UK - 22 hours ago … neurological illness, myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome, through mental determination and physical exercise. …...
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